John “Gungie” Rivera, Founder of the Cristian Rivera Foundation
Tell us about what prompted you to create the foundation.
I started the Cristian Rivera Foundation because no parent should ever have to bury their child, especially due to a devastating disease like Diffuse Intrinsic Pontine Glioma (DIPG). After losing my six-year-old son, Cristian, to this rare brain stem tumor in 2009, I made a promise to dedicate my life to finding a cure. Watching Cristian suffer as DIPG slowly took away his ability to walk, talk, eat, and move was heartbreaking. I knew I had to do something to ensure no other family would endure such unimaginable grief.
What is your charity doing now?
Supporting our mission is deeply personal, and there are many ways to get involved. You can donate, volunteer, become a board member, attend our gala, participate in our annual 5K, or help spread awareness about DIPG. Every contribution—big or small—moves us closer to finding a cure.
Our foundation is fully committed to funding critical research for DIPG, focusing on groundbreaking clinical trials and genetic research. We've proudly supported the incredible work of Dr. Mark Souweidane at Memorial Sloan Kettering Cancer Center and as the Director of the Weill Cornell Medical College Pediatric Brain and Spine Center. Thanks to efforts like his, we've seen remarkable progress—before 2012, there were no survivors of DIPG. Today, five patients have responded positively to treatment, a milestone we are proud to be part of.
We're also honored to fund genetic research by Dr. Oren Becher at Pediatric Hematology-Oncology at Mount Sinai Kravis Children's Hospital. This work is critical to understanding and ultimately defeating this disease.
How many people have you been able to help?
Since the foundation's inception, we've had the privilege of empowering countless patients and their families facing the challenges of a DIPG diagnosis. Beyond funding vital medical research, we provide crucial support for families navigating this devastating journey, ensuring they don't face it alone.
Who are the most important guests at your event?
The most important guests are, without question are the children, families and individuals directly impacted by DIPG. Their courage and resilience inspire everything we do.
What drives a person to charity?
For me, it’s hope that no other family will have to endure the pain we went through. Every small victory, every breakthrough, and every moment of progress fuels our determination to keep fighting. Success for me would be the day we can finally say we've found a cure for this terrible disease.
Which celebrities are collaborating with you today?
The Cristian Rivera Foundation currently boasts an impressive roster of celebrities on its board. Our members include American entertainment reporter AJ Calloway, Today in New York anchor Darlene Rodriguez, professional boxer Edgar Berlanga, MLB player Gio Urshela, actor, comedian, and longest-running Saturday Night Live cast member Kenan Thompson, actor Luis Guzmán, Hollywood icon Malik Yoba, and more. Their involvement and passion for the cause helps amplify our efforts and raise awareness about DIPG.
What would you like to change or improve?
Our ultimate goal is to find a cure for DIPG, an incurable disease. We also aim to expand our research efforts and provide even more comprehensive support for families affected by this diagnosis. The more resources we can gather, the closer we come to achieving this vision.
Are there any new goals and ideas for 2025?
In 2025, we will continue to fund promising clinical trials, raise awareness, and provide unwavering support for families facing DIPG. Our mission remains steadfast: finding a cure and ensuring no child or family has tonavigate this journey alone.
How can people join your foundation today?
Supporting our mission is simple and deeply personal to me. You can attend our annual gala, donate, or help spread awareness about DIPG. Every contribution—big or small—brings us closer to finding a cure. You can also get involved by volunteering or purchasing one of our signature foundation items, like t-shirts, wristbands, brown beaded bracelets, or my book, Cristian's Journey, which I wrote to share my son Cristian's remarkable life and the inspiring message he left behind. Visit cristianriverafoundation.org to learn more and join me in making a difference.
Can good deeds change a person?
Good deeds can have a profound impact on a person's life. When we engage in acts of kindness, we uplift others and experience a transformation within ourselves. These moments of generosity can fill us with joy and purpose, helping us connect more deeply with those around us. The simple act of giving can lead to a brighter outlook on life, fostering empathy and compassion that enrich our own experiences.
Do people appreciate goodness in the modern world?
People do appreciate goodness, even in today's fast-paced world. While it may sometimes feel overshadowed by negativity, acts of kindness resonate deeply with many. Stories of compassion and generosity often capture our hearts and remind us of the goodness around us. In a world that can feel overwhelming, these moments of goodness inspire hope and encourage us to be better for ourselves and each other.
How many wealthy people in New York want to join charity work?
It's hard to say exactly how many wealthy individuals in New York are eager to engage in charity work, but many are driven to make a difference. For some, philanthropy is a calling—a chance to give back and support causes close to their hearts. While not everyone may be involved, there is a strong spirit of generosity among those who use their resources for the greater good. Ultimately, the desire to help others transcends wealth and speaks to our shared humanity.
